- They find it hard to tell people they have a difficult fatal illness that cannot be effectively slowed or stopped by any means.
- They fear that disclosing AD diagnoses might cause emotional scenes.
By the time you get to a point where you can be diagnosed with Alzheimer's disease you are already beginning to experience a loss of some of your cognitive functions. That's distressing. And to not know why is confusing, and can be frightening.
People are relieved, not distressed. They're relieved to have somebody who knows what's going on and gives a message of at least some hope ... a message that, “We will stand by and navigate this process with you."
Based on the principles of medical ethics, there is widespread agreement among health care professionals that people have the right to know and understand their diagnosis, including Alzheimer’s disease. The findings from this report shine a light on the need for more education for medical students and practicing health care providers on how to effectively make and deliver an Alzheimer’s diagnosis.
The comments from viewers about the video are also very interesting.
- CBS News: Many Alzheimer’s patients not told their diagnosis
- U.S News & World Report: Most Alzheimer's Patients Not Told About Their Diagnosis
- National Public Radio: Many doctors who diagnose Alzheimer's fail to tell the patient
- HealthDay: News for Healthier Living: Many With Alzheimer's Aren't Told of Diagnosis by Doctor: Report