April 6, 2017

My Hassle with the Hospital about my Parkinson's Meds

On January 20, I fell, fractured my hip, and knew I needed to go to the hospital. I remembered hearing stories from friends with Parkinson’s disease (PD) about complications they’d encountered getting their PD meds on time while they were hospitalized.

I didn’t want any of those troubles, so I packed a secret stash of my carbidopa/levodopa (Sinemet) pills before heading off to Sibley Hospital.

This National Parkinson's Foundation video describes this problem well:


The video offers some startling  stats:
  • People with PD are hospitalized 43 percent more often than others in their age group.
  • When they are hospitalized, 75 percent of people with PD don’t get their meds on time.
  • As a result, 61 percent of those patients develop serious complications. 

The video explains that patients with PD must be vocal and persistent with hospital staff about getting their meds on time. Many hospitals haven’t adopted the Parkinson’s Foundation’s training programs to increase awareness about the importance of maintaining timely medication schedules for people with PD.

As is typical for most Parkinsonians, my Sinemet dosage has increased through the years, and now I’ve reached the maximum dosage as far as my prior neurologist was concerned. These days, I normally take two pills every three hours: at 2am, 5am, 8am, 11am, 2pm, 5pm, 8pm, and 11pm.
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