February 22, 2018

John V. Schappi, 1929-2018


John’s family would like to share this sad news with the readers of his blog:

John V. Schappi passed away on February 21, 2018 in Washington, DC, after two recent strokes and a long battle with Parkinson’s disease. He was 88.

A 1952 graduate of Cornell University’s School of Industrial and Labor Relations, John spent nearly 40 years working at the Bureau of National Affairs (now Bloomberg BNA), a legal publishing company. Hired in 1955, he later became associate editor overseeing BNA’s human resource publications. He also authored the book, Improving Job Attendance, named to Princeton University’s 1988 list of "Noteworthy Books in Industrial Relations and Labor Economics." He retired as vice president of BNA’s HR department in 1994 but remained on the company’s board of directors until 1998, completing 20 years of board service.

Outside of BNA, John was actively involved in the Washington, DC community. From 1982 to 1992, he served on the Whitman-Walker Clinic’s board of directors and as board president in 1990-91. He was selected for Leadership Greater Washington's class of 1990-91 and served on its board of directors in 1993-94. While a member of the vestry for St. John's Episcopal Church on Lafayette Square, he also served on the board of directors of the Pastoral Counseling and Consultation Center from 1988 to 1994.

During his retirement, John enjoyed biking, playing bridge, gardening, and attending theater and dance performances. He travelled frequently, collected friends around the globe, and developed a particular love affair with Nepal. He also continued to write, sharing his thoughts and experiences on his blog Aging, Parkinson’s and Me, recognized by Healthline as one of the best Parkinson’s disease blogs.

John is survived by his brother Roger Schappi in Ithaca, NY; children Todd Schappi in Thurmont, MD, and Ann Schappi in Alexandria, VA; grandchildren Jessica Dreisonstok, Emily Schappi-Fuller, and Colin Schappi; and seven great-grandchildren. He also leaves behind his long-time housemates, Nimesh Thapa, Bhawana Khadka, and their daughter Nivah, as well as scores of close friends who enriched his life. John’s children would especially like to thank his friends David Froemming and Bill Feldman for their incredible support over the past months.
In lieu of flowers, please feel free to make donations to the Parkinson’s Foundation (http://www.parkinson.org/).

We’ll share information about a memorial service as soon as details are set.

November 20, 2017

Hello from Rehab!

I haven’t posted anything for weeks. Here’s why:
  • On Sept 25, I had a “spell” at home, probably a TIA.
  • On Sept 26, I had another more serious spell at home, went to Georgetown Hospital, underwent tests, and learned I’d had “small stroke,” which affected mainly my right hand and arm.
  • On Sept 30, I fell at home, gashed my head, went to GWU Hospital, and received 15 staples and 6 stitches. I was admitted, and then had a series of TIAs that night. Additional weakness to my right side. (I would not have survived this fall had I not been wearing the medical alert chain around my neck. I used it to summon the EMTs.) 
  • On Oct 4, I went to the rehab center at Sibley Hospital. (I have no recollection of being at GWU or Sibley Hospital, and have heard that friends and family who were present did not think I was going to survive.)
  • On Oct 9, I went home under home hospice care. While at home for several weeks, I felt like I was improving.
  • On Nov 2, I went to the rehab center at Forest Hills on Connecticut Avenue, and have been here since. The photo of yours truly was taken in my room yesterday.


Therapists are working to help improve my speech and build up my strength. These healthcare providers, family, and friends all seem to agree that my situation is improving.

I'll keep you posted.

September 6, 2017

Happy New Year!

When I left Cornell Law School in March, 1955, I was two months away from my 26th birthday. Beginning when I was 5, the big event in all those formative years came in early September with the start of a new school year. So I've always thought of the week after Labor Day as the beginning of a New Year.

In many religions, fall is also a time for major festivals or events that call for reflecting on the past and contemplating the future.
  •  Dashain is the major festival for Hindus in Nepal. It usually occurs in late September or early October,
  •  Rosh Hashanah, the Jewish New Year, will be  celebrated September  9 and 10 this year. Yom Kipper, the Day of Atonement, follows on September 22.
  • Eid al-Adha, the celebration held to commemorate the story of Ibrahim, is the holiest event of the Muslim year. In 2017, it began either August 31 or September 1 and coincides with the Hajj pilgrimage to Mecca.
This will be the start of what promises to be a special year for me to reflect on the past, contemplate   the future, and enjoy each day with family and friends.

August 31, 2017

Here's What Has Helped Me -- My Bidets

Note: People keep telling me I'm doing exceptionally well for someone 
my age (88) who has had Parkinson's disease as long as I have (10 years). 
So I'm doing a series of posts recounting some of the things that have 
helped me deal with aging and Parkinson's disease.
But remember that my Parkinson's disease might more accurately be called  John Schappi's disease Parkinson's is a very idiosyncratic disease. So what works for me might not help others.

We'll start at the end.


This is the toilet/bidet in the upstairs guest bathroom. There are similar installations in my bedroom bathroom upstairs and in the laundry room bathroom in the guest quarters.

The modifications were relatively easy (for my home contractor) and inexpensive (for me). I'll get back to the details later. But first, a few comments on bidets in general.

Bidets in U.S. and Elsewhere
Bidets are fixtures in bathrooms the world over, but they haven't really caught on in the U.S. Instead of washing with water after relieving themselves, Americans would rather deforest millions of acres in order to produce toilet paper.

We think bidets are too European, too Parisian. We suspect they have something to do with s-e-x.

Americans use almost 8,000,000 tons of toilet paper each year. Eight million tons! And the bleaching process -- we like white toilet paper -- creates cancer-causing chemicals.

Hygiene after defecating is something most of us prefer to handle privately and independently. But the process can become a difficult challenge -- physically and emotionally -- for many elderly or disabled seniors.

August 30, 2017

Surprise! Moments of Joy Are Still Possible

This post was prompted by a moment that occurred on Saturday morning, August 19, a day when we finally had moderate temperatures and low humidity.

Our Founding Fathers made a lot of great decisions, but deciding to build the Nation's Capital on a swamp wasn't one of them. Our summer humidity drains me of energy, and each year gets worse. But this August, unlike most other months so far this year, will not go down in the record books as the hottest ever.

My energy level has been rising as the heat and humidity drop, so I can get back to the blog. In the coming months, I plan to write about death, dying, and my "final exit." But let's start on a happier note.

In my 70s and 80s, I've experienced moments when I'd spontaneously say to myself "I love my life!" These moments came more often in my 70s, before I received my Parkinson's disease diagnosis.

In addition to the "I love my life" moments, I've had a few occasions when I've had more intense experiences of joy that have felt actually physical. These moments have surprised me because they didn't occur in settings where such feelings might  be expected, such as when  I saw the Taj Mahal at dawn, or looked at Michelangelo's statue of David in  Florence for  the first time.

But one of those moments of special joy did occur while travelling abroad. It was near a place called "Scott's View" in the Scottish Borders. My pal Richard Cooper, whose flat in London was my "home away from home" during my many visits to the UK, loved the Borders. We drove up there often.

On this occasion, Richard pulled his car into a parking area near Scott's View. We sat without speaking at this spot overlooking the valley of the River Tweed, which is reputed to be one of Sir Walter Scott's favorite vistas. While taking in the view, we listened to Nina Simone sing

I Wish I Knew How It Feels To Be Free.

I often recall this special time with my pal Richard. A few of us still exchange emails reminiscing about Richard every April 22, Richard's birthday. It's been 17 years since Richard's suicide on May 3, 2000. When God closed Richard's door, She opened the window to Nepal for me.

Geez! I had no idea I'd end up here when I began this trip down Memory Lane.

Let's get back to the topic I started with -- those occasions when I've been suddenly, unexpectedly struck with a wave of happiness. The most memorable of  these incidents happened in a very mundane setting,. I was standing at the top of my driveway leading down to the garage.

It was late afternoon on a glorious autumn day, and I had just returned from an afternoon bike ride to Mt.Vernon. A regular biker, I'd made that trip many times and was stunned -- simply standing outside my house -- by the wave of happiness that hit me with such force that I feared losing my balance.

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